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Mental Health

Grey electronic device used for tracking sleep

SleepXacT: Use of contactless sleep technology for measuring sleep in people living with dementia and mild cognitive impairment

Principle Co-Investigators: Dr Alpar Lazar and Dr Anne Killett

Sleep problems are common in people living with dementia and mild cognitive impairment (MCI), which can affect their health and wellbeing, and that of the people who care for them. Diagnosing and managing sleep problems in primary care is difficult, and GPs often rely on reports from carers. However, carers may not always notice these sleep problems, especially if they are busy with caregiving tasks or do not live with the person with dementia or MCI. As a result, care-plans to help sleep may not work as effectively.

To improve clinical decision-making, objective and reliable measures of sleep are needed. However, traditional methods of measuring sleep (for example, an overnight sleep study) are often intrusive or uncomfortable, making them tough to cope with for people living with dementia or MCI and thus limiting their use in the community.

Recent advances in sleep technology offer a promising alternative, as contactless sleep trackers can easily monitor sleep without any physical sensors or complex setups. However, despite this potential, there is little knowledge on if this technology is practical or acceptable for use in dementia and MCI.

Therefore, in the SleepXacT study, we are studying the use of a bedside sleep tracker device to measure sleep at home in people living with dementia or MCI. Our aim is to see if this is a practical way to understand sleep in this population. We also want to find out the thoughts of carers on using this device and understand what GPs think of the sleep measures gathered using this technology.

SleepXacT is funded by the National Institute for Health and Care Research (reference: NIHR206949) and is being conducted at UEA in collaboration with the University of Exeter and the Norfolk and Waveney Integrated Care Board.

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Empowering caregivers of children and family members with disabilities in rural Kenya

Principle Investigator: Prof. Karen Bunning

Caregivers and their children with disabilities are one of the most marginalised groups in sub-Saharan Africa. In partnership with the Kenya Medical Research Institute (KEMRI), we built on a previous collaboration with the World Health Organisation (WHO) to establish new principles for community-based inclusive development (CBID, formerly community-based rehabilitation: CBR). The partnership established empowering self-help groups for caregivers to address the economic poverty, disenfranchisement and alienation affecting such caregivers and their families in rural Kenya. The self-help groups are registered with the Kenyan Government Ministry and have become a vital, local source of entrepreneurship, employment, skills development and caregiver empowerment, with visible benefits for their communities. Peer support and self-advocacy have helped to address long-held prejudices against children with disabilities. This work has informed a model that is being adopted in other African countries. Demonstrating resilience to successive droughts and the COVID-19 pandemic, the caregivers have an enhanced role and their voices are heard.

A UK-registered charity (Walezi-caregivers Kenya: charity number 1204235) has been established to ensure the growth and expansion of this evidence-based inclusive development programme (. Its mission is to establish sustainable self-help groups in Kenya, and other countries in sub-Saharan Africa where caregivers share their experiences, support each other and achieve economic empowerment for a better quality of life for themselves, their children and family members with disabilities.

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Mental Health