I was one a team of three Patient and Public Involvement (PPI) members who were trained to work with the research team and conduct observations in acute hospital wards for PERFECTED.
I was inspired to get involved by my experience of supporting my mother who fell and broke her hip whilst in the early stages of Alzheimer's. I joined the PERFECTED Service User Advisory Group in September 2014.
"Observing on the ward was quite an eye-opener since the quality of care has improved so much since my mum was in there. I feel privileged to take part in a project that pushes the level of patient experience even higher. Mum had two stressful weeks in hospital and came out with very little self-confidence. That should never happen to someone in her situation and I believe that PERFECTED is key to helping."
SUAG (Service User Advisory Group) member and Lay Researcher / PPI for the PERFECTED Programme
Speaking of her involvement in PERFECTED Angela says: “The role of public involvement is vitally important because we bring a totally different dimension to the research process by showing how it feels to be a carer of a person with dementia and how it feels to be the person with dementia. That is hugely important and until recently that has been overlooked by researchers.”
Programme Advisory Group PPI member
Esther who has a background in clinical and educational work began representing patients and the public in research work in 1999.
Esther has a particular interest in dementia; "In the last years I have been particularly anxious to ensure that people with dementia receive the best possible care and have worked in Norfolk strategically to ensure this."