Having a voice in research
Based on research evidence, we developed the ASSENT guidance.
The purpose was to define a way through the complexities of including adults who may lack capacity and/or have communication difficulties in ethically-sound research.
It achieves this in the context of existing legislation, by:
Providing elucidation of the Mental Capacity Act (2005) research provisions in England and Wales;
Recognising personal autonomy in all its gradiations;
Defining practical strategies and resources that serve to endorse the greater agency of affected adults.
Drawing on our findings, we developed some web-based guidance to provide enhancements to the MCA Code of Practice within the context of existing legislation.