Motor neurone disease (MND) is now recognised as a systemic condition, affecting not only limbs, bulbar and respiratory systems, but also leading to deficits in cognitive and behavioural functioning.

Despite recognition of behavioural symptoms, no standardised approaches in managing these symptoms have been developed.

MiNDToolkit, a novel psychoeducational hybrid intervention for carers, is currently being tested in a randomised feasibility trial in the UK.

Visit the Mindtoolkit website to learn more.

Research Team and Funding

Prof Eneida Mioshi (UEA, CI)

Prof Michael Hornberger (UEA, CI)

Prof Lee Shepstone (UEA)

Norwich Clinical Trials Unit

If you are interested in taking part in MND research, please email the team at

Funding: MND Association