References

Bunning, K., Jimoh, OF., Heywood, R., Killett, A., Ryan, H., Shiggins, C. & Langdon, PE. (2022). How are adults with capacity-affecting conditions and associated communication difficulties included in ethically-sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales. BMJ Open 12: e059036. doi:10.1136/bmjopen-2021-059036.

Bunning, K. (2022/23). Lost voices: How can adults with capacity-affecting conditions and communication difficulties be accommodated within research practice. RCSLT Bulletin, Winter 2022/23, Issue 833, 36-39.

Bunning, K. (2021). Lost voices. People with capacity and communication difficulties are under-represented in research. Research Fortnight, 1st December, p.14. https://online.fliphtml5.com/qetge/vkfw/#p=14

Heywood, R., Ryan, H., Killett, A., Langdon, P., Plenderleith, Y., Shiggins, C. & Bunning, K., (2019) Lost Voices in Research: Exposing the Gaps in the Mental Capacity Act 2005. Medical Law International 19(2-3): 81-112. 

Jimoh OF, Ryan H, Killett A, Shiggins C, Langdon PE, Heywood R, et al. (2021) A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: Recruitment of adults with capacity and communication difficulties. PLoS ONE 16(9): e0256697. https://doi.org/10.1371/journal.pone.0256697

Killett, A., Langdon, PE., Shiggins, C., Heywood, R., Jimoh, OF., Redley, M., Ryan, H. & Bunning, K. (2023). Inclusion of adults with conditions that have the potential to affect capacity and or communication in research: triangulation from a mixed-methods study of current practice and values across multiple stakeholders. BMJ Open 13: e068366. doi:10.1136/ bmjopen-2022-068366.

Ryan H, Heywood R, Jimoh O, Killett A, Langdon PE, Shiggins C, Bunning K. (2021) Inclusion under the Mental Capacity Act (2005): A review of research policy guidance and governance structures in England and Wales. Health Expectations 24(1):152-164.