Biography

Steve is a social scientist with 16 years research experience on health and health policy-related issues, and on related questions of poverty, livelihoods, and policy implementation.  He holds a PhD in Health Policy from the London School of Hygiene and Tropical Medicine, University of London (2001) and an MA in Development Studies from UEA (1993).  He lived in Sri Lanka for 5 years, where he has conducted research on treatment seeking behaviour, illness costs and related household coping strategies, the links between illness and poverty, and health sector reform.

His recent research focuses on social aspects of HIV and AIDS, and in particular people’s management of HIV as a chronic condition when taking antiretroviral therapy (ART).  Using social and psychological frameworks, the research examines people’s adaptive strategies, their self-management, their work to rebuild lives and livelihoods, and to regain order and control.   This work started in rural Uganda in 2005 on a project funded by the Centers for Disease Control, and in 2010 Steve won an ESRC grant to extend the work in Entebbe, Uganda (working in collaboration with the MRC), using both qualitative and quantitative methods to explore people’s self-management on ART and mental and physical health outcomes.

Steve is a founder member of the HIV & Development Group at UEA (HIV UEA)

CV and Experience 

Click here to download Steven's CV

All Publications

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Nalugya, R., Russell, S., Zalwango, F., Seeley, J.

(2018)

The role of children in their HIV-positive parents’ management of antiretroviral therapy in Uganda,

in African Journal of AIDS Research

17

(1)

pp. 37-46

Full Text UEA Repository

(Article)

(Published)


Russell, S., Namukwaya, S., Zalwango, F., Seeley, J.

(2016)

The framing and fashioning of therapeutic citizenship among people living with HIV taking Antiretroviral Therapy in Uganda,

in Qualitative Health Research

26

(11)

pp. 1447-1458

Full Text UEA Repository

(Article)

(Published)


Martin, F., Russell, S., Seeley, J.

(2016)

Adjustment as process and outcome: Measuring adjustment to HIV in Uganda,

in Journal of Health Psychology

21

(5)

pp. 872-883

Full Text UEA Repository

(Article)

(Published)


Russell, S., Martin, F., Zalwango, F., Namukwaya, S., Nalugya, R., Muhumuza, R., Katongole, J., Seeley, J.

(2016)

Finding Meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda,

in PLoS ONE

11

(1)

article no. e0147896

Full Text UEA Repository

(Article)

(Published)


Russell, S., Zalwango, F., Namukwaya, S., Katongole, J., Muhumuza, R., Nalugya, R., Seeley, J.

(2016)

Antiretroviral therapy and changing patterns of HIV stigmatisation in Entebbe, Uganda,

in Sociology of Health & Illness

38

(1)

pp. 58–72

Full Text UEA Repository

(Article)

(Published)


Martin, F., Russell, S., Seeley, J.

(2014)

Higher quality of life and lower depression for people on ART in Uganda as compared to a community control group,

in PLoS ONE

9

(8)

article no. e105154

Full Text UEA Repository

(Article)

(Published)


Ilboudo, P., Russell, S., D'Exelle, B.

(2013)

The long term economic impact of severe obstetric complications for women and their children in Burkina Faso,

in PLoS ONE

8

(11)

article no. e80010

Full Text UEA Repository

(Article)

(Published)


Seeley, J., Watts, C., Kippax, S., Russell, S., Heise, L., Whiteside, A.

(2011)

Addressing the structural drivers of HIV/AIDS: A luxury or necessity for programmes?,

Full Text UEA Repository

(Paper)

(Published)


Russell, S., Seeley, J.

(2010)

The transition to living with HIV as a chronic condition in rural Uganda: Working to create order and control when on antiretroviral therapy,

in Social Science and Medicine

70

(3)

pp. 375-382

Full Text UEA Repository

(Article)

(Published)


Russell, S., Seeley, J., Whiteside, A.

(2010)

Editorial: Expanding antiretroviral therapy provision in resource-constrained settings: social processes and their policy challenges,

in AIDS Care

22

(Supplement 1)

pp. 1-5

Full Text UEA Repository

(Article)

(Published)


Seeley, J., Russell, S.

(2010)

Social rebirth and social transformation? Rebuilding social lives after ART in rural Uganda,

in AIDS Care

22

pp. 44-50

Full Text UEA Repository

(Article)

(Published)


Seeley, J., Russell, S., Khana, K., Ezati, E., King, R., Bunnell, R.

(2009)

Sex after ART: Sexual partnerships established by HIV-infected persons taking anti-retroviral therapy in Eastern Uganda,

in Culture, Health & Sexuality

11

(7)

pp. 703-716

Full Text UEA Repository

(Article)

(Published)


Russell, S., Seeley, J.

(2009)

The transition to living with HIV as a chronic condition: working to create order and control on anti-retroviral therapy,

Full Text UEA Repository

(Working paper)

(Published)


Goudge, J., Gilson, L., Russell, S., Gumede, T., Mills, A.

(2009)

Affordability, availability and acceptability barriers to health care for the chronically ill: longitudinal case studies from South Africa,

in BMC Health Services Research

9

article no. 75

Full Text UEA Repository

(Article)

(Published)


Molyneux, C., Goudge, J., Russell, S., Chuma, J., Gumede, T., Gilson, L.

(2009)

Conducting health-related social science research in low income settings: Ethical dilemmas faced in Kenya and South Africa,

in Journal of International Development

21

(2)

pp. 309-326

Full Text UEA Repository

(Article)

(Published)


Goudge, J., Russell, S., Gilson, L., Gumede, T., Tollman, S., Mills, A.

(2009)

Illness-related impoverishment in rural South Africa: Why does social protection work for some households but not others?,

in Journal of International Development

21

(2)

pp. 231-251

Full Text UEA Repository

(Article)

(Published)


Goudge, J., Russell, S., Gilson, L., Molyneux, C., Hanson, K.

(2009)

Household experiences of ill-health and risk protection mechanisms,

in Journal of International Development

21

(2)

pp. 159-168

Full Text UEA Repository

(Article)

(Published)


Goudge, J., Gilson, L., Russell, S., Gumede, T., Mills, A.

(2009)

The household costs of health care in rural South Africa with free public primary care and hospital exemptions for the poor,

in Tropical Medicine & International Health

14

(4)

pp. 458-467

Full Text UEA Repository

(Article)

(Published)


Russell, S.

(2009)

Coping with the costs of illness: vulnerability and resilience among poor households in urban Sri Lanka,

in Health, Economic Development and Household Poverty: From Understanding to Action.

Routledge

ISBN 978-0-415-49374-1

Full Text UEA Repository

(Chapter)

(Published)


Russell, S., Seeley, J., Whiteside, A.

(2009)

Expanding antiretroviral therapy provision in resource-limited settings: social dynamics and policy challenges,

UEA Repository

(Paper)

(Published)


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Key Research Interests

Social science research on household and community health, and recently focusing on HIV and AIDS. Factors influencing treatment seeking behaviour, illness costs and the economic burden of illness, related individual and household coping strategies, resilience, and the links between illness and impoverishment.  Social analysis of HIV and AIDS, focusing on the social and economic impact of HIV on individuals and households, and people’s self-management of HIV as a chronic condition: their adaptive strategies, self-management and adjustment. Demand-side approaches to health system development, particularly people’s trust in, access to and uptake of health care services, and health policy as social protection policy tool. Primary research experience in Sri Lanka, Uganda, Thailand, Ethiopia and South Africa. Earlier research focused on health policy analysis, particularly health financing and equity, decentralization and organizational capacity, and wider institutional environments that enable or constrain health sector reform processes.

Research Groups: Health and Disease 

Research interests

The economic burden of illness for households

Research expertiseon the economic burden of illness for households, measuring access, treatment behaviour, the costs of illness, strategies adopted by households to cope with costs, and the medium term impact of illness costs and strategies on household livelihood and poverty outcomes.  Developed conceptual and methodological approaches for the analysis of household vulnerability to illness-related impoverishment, and factors affecting household resilience to illness costs.  His work  also includes user trust in health services and its influence on access and uptake of health services.  He has conducted primary research on illness costs, impoverishment and factors influencing resilience in Sri Lanka (ESRC-funded) and worked on similar research in Ethiopia (SCF-funded) and South Africa (Wellcome Trust).  Stevewas a co-investigator on a Wellcome Trust-funded project (2006-8) in rural South Africa, in collaboration with LSHTM and the University of Witwatersrand, that examined people’s access to health care services, and the influence of free PHC, hospital exemptions, pensions and other cash transfers on access to and affordability of health care.  He was then a co-investigator on an ESRC-Hewlett-funded research project (2008-10) in Burkina Faso that measured the impact of obstetric complications on economic, social and health outcomes for women and their families over a 4 year period, working with colleagues at LSHTM and GREFSaD in Bobo-Dioulasso.  

Social aspects of HIV and AIDS, focusing on people’s self-management of HIV on antiretroviral therapy (ART)

Research in rural South Africa also examined people’s access to care for chronic health conditions,  people’s management of chronic illness.  His most recent research has focused on people’s management of HIV as a chronic condition in Uganda when taking ART: their adaptive strategies, their self-management and adjustment, and their work to rebuild lives and livelihoods, to regain order and control.   This work started in rural Uganda in 2005 on a project funded by the Centers for Disease Control, and after publishing this work in 2010 Steve won an ESRC grant to take forward the work in Entebbe, Uganda, using both qualitative and quantitative methods to explore people’s self-management on ART and mental health outcomes.

Health financing policy

Steve’searlier workexamined the revenue and equity impacts of user fees, pre-payment schemes and other risk sharing or health insurance mechanisms, and factors influencing their impact. He has conducted research on the effectiveness of targeted exemptions to the poor and factors influencing exemption uptake and coverage, in South Africa, Thailand, Zimbabwe and Ethiopia and more recently Burkina Faso.  In South Africa the research looked at health services from a social protection and social inclusion perspective, and analysed the synergies of free health care and cash transfers and how these influenced household resilience to illness-related shocks.

Health sector reform

Steve’s earlier research also looked at health service delivery and financing arrangements, and government capacity to deliver reforms to these arrangements. He conducted policy analysis in Sri Lanka and Zimbabwe of decentralization to district management boards or tertiary hospital management boards, and government capacity to design and implement reforms, looking at organizational capacity within Ministries of Health and the wider institutional and political environment that influences reform processes (DFID-funded and WHO-funded research). 

Teaching Interests

I enjoy teaching and always seek to engage students in the learning process through particiaptory and interactive sessions. I teach on health and development related topics, such as HIV and AIDS, at postgraduate and undergraduate levels. I also teach social theory and social development, and research methods. Where possible I incorporate my research into the subjects I cover at both postgraduate and undergraduate levels. I use a range of techniques, including lectures, workshops for practical exercises and smaller group work, and I use various media to enhance teaching and to illustrate development settings where possible.

Research Supervision

I supervise PhD students who work on health-related issues that are related to my areas of expertise, and I am always keen to hear from people who wish to pursue new PhD research on questions related to HIV and other chronic illness management in resource poor settings, and on questions of health, illness and poverty.